Tuesday, April 23, 2013


So much has happened over the past few months.  So many people have been asking for updates on Harper.  I have not been able to keep up with all the progress she has made recently.  So, I started a Facebook page called Harper's Warriors https://www.facebook.com/HarpersWarriors  Where people can check-in for updates and I can post pic and videos quick and easy.

Thank you to all who have been supporting Harper and our family.  We are truly blessed with such wonderful friends and family.

If you find yourself here because someone you know has been diagnosed with the KCNQ2 mutation please feel free to contact me.  We have started a Closed Support Group on Facebook.  I have been in contact with families for all over the world.

Scotty Sims

Wednesday, December 19, 2012

A few steps forward and one step back

Over the past month I have been making great strides.  The only down fall Ive had recently is that this past week I got a bad GI virus and have been to the ER twice for hydration.  I haven't eaten solids in 6 days.  We are hoping and praying that I'm on the upswing of this thing as it has been really bad.

I'm not a happy camper right now but last week I definitely had a sense of humor.......

I've had cognitive gains as well.  Mommy has been telling everyone that I now notice when I do something good and respond to people excitement.  I'm am now able to be proud of myself.....what a great feeling.  I am also responding to more verbal commands like....stop, go, clap, and am able to sign "more" in the appropriate context.  Mommy brought my Christmas present out early to see if it would be appropriate.  This was taken during my first few minutes on my rocking horse.

Mommy woke up the morning after Thanksgiving to find me on all 4's in my crib and then I sat up all by my self.  She didn't get it all on video because she was literally screaming from excitement.  Now I'm wishing Mommy and Daddy hadn't seen me do that because they are expecting me to do it again.  So on 3 other occasions I've gotten on all 4's to keep them happy.

Since I have been doing so good with my fine and gross motor skills I needed to start doing something special for my Speech Therapist so she wouldn't feel left out.  The other day I decided to start using a spoon if someone loaded it for me.

Love spending time with Aunt Destin

Hanging with Uncle Widg isn't bad either.

Playing on the porch.

Weeeeeeeeeeeeee !!!!!!!